Levi is most often described as “a light” or “shining light”. He loves people and has an almost super human ability to make others around him feel special. This is especially remarkable given that almost all of his 12 years of life have been filled with hardship.
At the age of two he had his first brain tumor diagnosis and major surgery. He was fortunate to have the next ten years tumor free as he adjusted to living in a body with complex medical conditions, physical disabilities, visual impairment and many related challenges of diagnosis like this.
Sadly, in the fall of 2021 his annual MRI showed tumor regrowth. Hard news after being hopeful of never having to go through brain surgery again. He summoned courage and underwent endoscopic nasal surgery to remove the tumor. He had many complications during his recovery but after months of recovery he was finally getting back to his strength prior to this surgery.
Just when we were hoping to close the chapter and move on his MRI scan in February revealed that he has more tumor regrowth. The immediate fears were having to go through another major brain surgery or radiation which we’d been trying to spare him from.
After meeting with his neurosurgeon, oncologist, radiation oncologist we’ve decided he’ll have a small surgery to reduce the size of the tumor via a robotic cyst fenestration and then he’ll start a six week course of daily proton beam radiation. Fortunately, he’ll have the weekends off.
It’s easy to imagine how much strain this puts on a family. Levi has two brothers and a sister and both of his parents work full time. These health crises require long gaps in work and combine with increased expenses. By supporting us you will allow us to cover the income gap and to cover extra childcare, meals on the road, gas, etc.
Mitchell Thorp Foundation has been by our side since just after Levi’s first surgery. The foundation is here again to help them under the Medical and Home Assistance program. We need the community's support, please consider donating any amount to help Levi get through this once again. Giving through this organization allows Levi to get access to all the funds and you get the benefit of your gift being tax deductible.
Together is the only way.