My son Shane Shriner is 20 years old. He
has Duchenne Muscular Dystrophy. He was diagnose at the age of 5
when he was in kindergarten. When the doctors office called and told us
to come in his dr wanted to talk to us. When we sat down in his office
and he told us that Shane had DMD. The first thing my husband and I said
was. What do you need to take from us and give to him. We
had never even heard of this disease. I didn’t know what to do. I did
the worst thing ever and got on the internet and started to read about
it. I was in shock what I was reading I was very discourage.
Doctors app then followed. When he was 9 he got sick and from then
on he hasn’t walk. As Shane got older his loved for music grew.
He learned to play guitar and drums. He could still play the drums
even though he couldn’t walk. He had movement. Just not the
strength to walk. He played the drums until 2012. When the
bus driver failed to put his seatbelt on in his chair and when she slams her
breaks he fell out of his chair and broke his Fibia and tibia. Then no
more drums. Just guitar. Up to about 2 years ago he hasn’t played
guitar it got harder for him to hold it. His loved for music is still
there. He makes beats and records his music and friends.
My husband built him a studio for all his music stuff. We
always made sure he had a hobby since of course there isn’t any other hobby he
can do. Shane is your typical 20 year old young man. He is just
confined to a wheelchair. Lately he had been a lil on the downside
because he can’t get out of the house especially when we have in-climate
weather. He is missing therapy and doctors app and what’s
going on around him. That’s why we are determined to get a van
to transport him. We currently lift him and put him in his
sit in the van and load his chair with 2x6 ramps. He needs to feel as if
he is still living outside these 4 walls. We are just a family
that takes it day by day. Hoping and praying for our son to live the best
life he can.