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Sponsor the GAND Gathering & Scientific Conference

Make an impact in a rare, underserved community!

4th GAND Gathering & Scientific Conference

Sponsorship Opportunities

Helping Hands for GAND, Inc. (HHFG), is excited to announce that the GATAD2B-associated neurodevelopmental disorder (GAND) community will once again come together on July 1820, 2024, in Williamsburg, Virginia, for the 4th GAND Gathering & Scientific Conference.  This year’s Conference will be held at the Williamsburg Woodlands Hotel & Suites.


Attendees of the 2022 GAND Gathering & Scientific Conference



WHAT IS GAND?

GATAD2B-associated neurodevelopmental disorder (GAND) is a syndrome characterized, in part, by intellectual disability, low muscle tone, and childhood apraxia of speech. Global developmental delay is seen in the first year of life, and many patients experience feeding difficulties, particularly in infancy. As of March 2024, there are approximately 370 known cases worldwide of affected individuals with GAND.  


WHO WILL BENEFIT FROM THE CONFERENCE?

The 2024 GAND Gathering & Scientific Conference will be a unique opportunity for individuals with GAND, most of whom are children, and their families to connect with others affected by GAND, meet scientific researchers studying this rare disorder, enjoy a group interaction to build relationships and raise awareness, and tangibly participate in a community not found in their local areas. For most families, the GAND Conference may be the only opportunity they have to meet others facing the same challenges and learn more from scientific researchers. Attendees will go home better energized and equipped to live their lives, support their rare loved ones, and raise awareness.

 

WHAT WILL FAMILIES LEARN FROM SCIENTIFIC RESEARCHERS?

Another insightful study of GAND was recently published in January 2024, and two of the paper’s main authors will be speaking at our conference. Stem-cell and mice model research projects are in progress, and the GAND community is eager to hear updates on these important projects at this summer's conference. Such research advancements in recent years have been made possible in large part due to the efforts of HHFG bringing together scientific researchers and GAND families from around the world. GAND families will have the opportunity to meet with scientific researchers to gain a better understanding of GAND and learn more about research and treatment opportunities.  And through this endeavor, all GAND families could potentially feel the impact from the knowledge gained from such research studies.


WHAT TYPE OF SESSIONS WILL BE HELD AT THE CONFERENCE?

Attendees will participate in presentations from scientific researchers and other professionals who work with GAND families. These presentations will give families a better understanding of their loved one’s condition and provide them an opportunity to ask questions of experts with the most up-to-date knowledge of GAND. In addition, attendees will participate in parent panel discussions covering topics such as augmentative and alternative communication (AAC), building self-help skills, transitions in care and life, patient advocacy, as well as support sessions for siblings of GAND children. Families will also be provided with an opportunity for fun group activities at a popular resort where other guests will be present, providing an excellent opportunity to build relationships and raise awareness about GAND.


Please partner with us by becoming a sponsor of the 4th GAND Gathering & Scientific Conference to benefit HHFG and GAND families.  We look forward to partnering with you to further our mission by increasing awareness and bringing together researchers and GAND families from around the world.





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