
Happy Sweet 16 Caroline!
Happy Sweet 16 Caroline!
Felices 16 Caroline!
To celebrate Caroline’s birthday, we would like to invite you to make a contribution to the Glut1 Deficiency Foundation.
Glut1 Deficiency is a rare genetic syndrome that disturbs brain metabolism causing seizures, disordered movements and developmental delays. It is a rare disease that, like many other rare diseases, goes unnoticed when it comes to devoting funds to its research.
For her birthday, Caroline does not wish for gifts. Instead she would like to ask that people who are able to donate what they can to Glut1 Deficiency Foundation. These funds can help the foundation continue to support further research about this syndrome and create more awareness of its existence and needs.
Until June 20th, we hope to count with your support so that we can improve the quality of life of those with Glut1 and their families.
Thank you for being part of this celebration and of our #glut1community
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En honor al cumpleaños de Caroline, te invitamos a realizar tu aporte a la Glut1 Deficiency Foundation.
El Déficit de Glut 1 es un síndrome genético raro que perjudica el metabolismo del cerebro provocando convulsiones, movimientos desordenados y retrasos del desarrollo. Se trata de una enfermedad rara que, como muchas, son invisibles a la hora de recibir fondos para ser investigada.
Para su cumpleaños Caroline no quiere regalos, solo aportes de aquellos que puedan colaborar para que la Glut1 Deficiency Foundation continúe con su tarea de apoyar investigaciones y aportar a la visibilización de esta enfermedad.
Hasta el 20 de junio esperamos sumar sus aportes ayudando a mejorar la calidad de vida de los GLUT1 y sus familias!
Gracias por ser parte de este festejo y sumarse a la #COMUNIDADGLUT1

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