Adrian Max was diagnosed with a very rare bone cancer that even some health professionals were not familiar with called Clival Chordoma. At 3 years old he has faced life-altering circumstances with extreme bravery and courage. He was admitted in the emergency department inability to remove his left arm and scans showed upper cervical tumor compressing his spinal cord. Adrian Max endured 3 craniotomies for tumor resection, a cervical bone fusion surgery , a tracheostomy and gastrostomy. That is a total of 6 surgeries in the span of 4 months! Post-surgery he was quadriplegic but after 2 months of being in the hospital he made gains and was able to be discharged from the hospital walking on his own.
Unfortunately, his tumor resection showed increase in growth requiring Chemotherapy as the next step. Tumor is too close in proximity to the brain stem to radiate at this point and is also inoperable for a complete resection due to being in a critical location that can affect his breathing or mobility. Adrian Max is primarily inpatient in the hospital on a weekly basis either for chemo or a fever, aside from other appointments. With his medical complexity both his parents who are trained for his care take turns to care for him during consecutive hospital stays. It has taking a toll on the family financially with frequent hospital stays since January and balancing out time and care for their two other children who are 6 and 7 years old . Financial assistance will help with medical bills, housing, and gas for frequent trips to the hospital would alleviate some of the financial burden his family is experiencing.