Care Package for ALD Newborn Screen Babies

Care Package Registration

These care packages are best suited for families with a baby boy that has been diagnosed with ALD as a newborn within the past year. Your box will contain:

A Parent's Guide to ALD
"Navigating ALD" brochure
The Donut That Roared (children's book about MRIs)
an MRI-safe teddy bear - *currently out of stock, will ship when available*
"Coping with an ALD Newborn Screening Diagnosis" support guide
Our HOPE onesie

Care Package for ALD NBS Babies

"The doctor's appointments, blood work, and MRIs have become a part of life and even embraced by our boys who always seem to find the fun in everything, as children often do. This will be your son. A diagnosis of ALD in no way takes away from how beautiful and precious your baby is and the joy he brings."

- Suzanne Flynn, excerpt from Letter from an ALD Mom (A Parent's Guide to ALD)

Thank you to Travere Therapeutics for making this Care Package Program possible!

Care Package

FREE

Max Quantity:1

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Care Package for ALD Newborn Screen Babies

Care Package for ALD NBS Babies

Care Package

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