Care Package for ALD Newborn Screen Babies

Care Package Registration

These care packages are best suited for families with a baby boy that has been diagnosed with ALD as a newborn within the past year. Your box will contain:

A Parent's Guide to ALD
The Donut That Roared (children's book about MRIs)
an MRI-safe teddy bear
"Coping with an ALD Newborn Screening Diagnosis" support guide
Our HOPE onesie

Please note, we are only able to ship these packages within the United States at this time.

Thank you to AMGEN for sponsoring this Care Package Program!

Care Package for ALD NBS Babies

"The doctor's appointments, blood work, and MRIs have become a part of life and even embraced by our boys who always seem to find the fun in everything, as children often do. This will be your son. A diagnosis of ALD in no way takes away from how beautiful and precious your baby is and the joy he brings."

- Suzanne Flynn, excerpt from Letter from an ALD Mom (A Parent's Guide to ALD)

Care Package

FREE

Max Per Order:1

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Care Package for ALD Newborn Screen Babies

Care Package for ALD NBS Babies

Care Package

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