Care Package for ALD Newborn Screen Babies

Care Package Registration

These care packages are best suited for families with a baby boy that has been diagnosed with ALD as a newborn within the past year. Your box will contain:

A Parent's Guide to ALD
"Navigating ALD" brochure
The Donut That Roared (children's book about MRIs)
Mr. I (MRI-safe teddy bear)
Our HOPE onesie
other surprises!

Care Package for ALD NBS Babies

"The doctor's appointments, blood work, and MRIs have become a part of life and even embraced by our boys who always seem to find the fun in everything, as children often do. This will be your son. A diagnosis of ALD in no way takes away from how beautiful and precious your baby is and the joy he brings."

- Suzanne Flynn, excerpt from Letter from an ALD Mom (A Parent's Guide to ALD)

Thank you to Travere Therapeutics for making this Care Package Program possible!

Date:

Ongoing

Care Package

FREE

Care Package for ALD Newborn Screen Babies

Care Package for ALD Newborn Screen Babies

FREE

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Care Package for ALD Newborn Screen Babies

FREE

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