It has been a long while since we updated this platform. Since the June update, Carly has completed proton radiation. Unfortunately, her post-radiation scans show that her cancer has returned and metastasized to her central nervous fluid. On September 15, 2023, Carly was formally diagnosed with Leptomeningeal disease. The treatment options for this reoccurrence are limited, and the prognosis is grim.
Carly is currently an inpatient at Children's Hospital Orange County, receiving treatments to get her back to a solid baseline to give her oncologists at Memorial Sloan Kettering Cancer Center the best chance at providing additional treatment options. In addition to conventional therapies, I have onboarded several holistic therapies to complement and assist with helping her to remain stable.
Our biggest challenge at this time is Carly's total loss of mobility. She cannot move her body from the neck down. We must retrofit our home and purchase supportive equipment to help transport and support her during this challenging journey. I do not know what the future holds, but Carly is still here and fighting. We will not lose hope or cease in our efforts to save her life.
For the latest video and picture updates, please visit her social media using the handle @coinsforcarly or by clicking the links below. Thank you all for your continued support. We need it now more than ever.