Join Tight Lipped
Advocating to change vulvar, vaginal, and pelvic pain treatment
Do you have pain with sex, tampons, or pelvic exams? Does your vulva feel like it's on fire? Do you feel like you have a UTI all the time? Have you struggled to get the care you need?
Join Tight Lipped! We're a grassroots advocacy organization changing how vulvovaginal and pelvic pain is treated. Sign up here to learn more about our work and get involved in our community. Tight Lipped uses a community organizing framework, bringing patients, medical providers, and allies together to collectively shift medical practice and social attitudes. Our current campaign aims to address gaps in OB/GYN education and ensure that every gynecologist in the United States learns how to diagnose and manage common vulvovaginal and pelvic pain conditions.
***IMPORTANT MESSAGE***
If you live in one of the following cities/areas and want to get involved with Tight Lipped there, please use these links to navigate to the relevant interest form:
Established Chapters:
Growing Chapters:
We are not able to support any additional chapters at this time. Our established and growing chapters are focused on advocacy and our campaign, which requires significant organizational support and resources.
If you do NOT live in/near one of the cities listed above, please DO fill out this form to stay in the loop about upcoming events & opportunities, and we will reach out to you directly if we have plans to start a chapter near you in the future. We also encourage you to self-organize or host meet-ups in your city to build community. We are happy to publicize local events, just send us the info at [email protected]. We’re excited to welcome you to our community!
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What's chronic vulvovaginal/pelvic pain?
We use this term to refer to a variety of conditions that cause vulvar burning, rawness, itching and pain; pain with insertion (sex, tampons, pelvic exams, etc), UTI-like symptoms, pain with urination, sitting, and tight pants. This includes conditions like vaginismus, vulvodynia, pelvic floor dysfunction and lichen sclerosus. (Find medical resources and information here).
What's Tight Lipped?
Tight Lipped is a grassroots movement by and for people with chronic vulvovaginal and pelvic pain. We fight for a world where these conditions are diagnosed correctly, treated effectively, and given compassionate care. You can check out our storytelling podcast and read our zine, Opening Up, here.