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ALD Newborn Screening Consortium September 2023

Wednesday, September 13th, 2023 12PM - 1PM ET


We are excited to announce that Dr. Alexandra Keefe of the University of Washington/Seattle Children’s Hospital will be presenting her ongoing research efforts on mosaicism in ALD patients diagnosed through newborn screening.  Dr. Stephan Kemp will also be providing an update on the Grey Zone Project. 


As always, we will welcome any questions for screening and follow up issues.  We will provide an update on the collaborative spreadsheet.  We are still working on a way to make it easy to work with for all participants.  


Zoom Link for meeting will be sent via email after registration is complete.


REMAINING 2023 CONSORTIUM DATES:

Wednesday, December 13, 2023 | 12PM ET


SAVE THE DATE:

8th Annual ALD Standards of Care Conference 

In-person NBS Program & Lab Roundtable Discussion: Wednesday, March 20th, 2024

Standards of Care Conference: Thursday, March 21 & Friday, March 22, 2024



 


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