2024-2025 NC Down Syndrome Virtual Speaker Series

8/14 Transitions

7:30 pm


Kenzie Clark, Founder and Manager of Able Transition Consulting

In this session, Kenzie Clark will cover the main components of transition planning and outline the most essential things to do to prepare for adulthood while your child is between the ages of 10-22 years of age. Kenzie will review how you can prepare based on where you are currently. You will leave this seminar with actionable items to support a more successful transition to adulthood. 

Kenzie Clark is the Founder and Manager of Able Transition Consulting. As a former Special Education Teacher, Kenzie saw the need for transition services and sought out a Master's Degree in Secondary Special Education and Transition through the University of Kansas. The transition process and preparing all families and individuals for high-quality lives is her passion. Kenzie's master's degree provides her with expertise and knowledge regarding all things transition. After teaching in the public school system, Kenzie felt called to open the doors of Able Transition Consulting, LLC, to collaborate with and serve families.

Registration closes on August 12th.

Max Per Order:1
Ending 08-13-2024 @ 12 am EST

9/11 A Legacy of Love: What Every Parent & Caregiver Should Know About Special Needs Trusts

7:30 pm

A Legacy of Love: What Every Parent & Caregiver Should Know About Special Needs Trusts

Mark Costley & Alan Dickinson, Attorneys at Clarity Legal Group

The attorneys of Clarity Legal Group are pleased to present on Special Needs Trusts, a virtual "must" to empower and support the lifespan of loved ones with Down syndrome. We will cover: 

  • The different types of SNTs
  • When the different types of SNTs apply
  • The meaning and application of common provisions found in SNTs
  • How to use SNTs to enhance the life of your loved one
  • Where SNTs fit into broader estate planning 
  • The perils of not having a SNT in place

A Q&A session will follow our presentation. Our team is here to offer you clarity, guidance, and support.

Mark Costley has more than 35 years of legal experience, including 25 years as an estate planning attorney in the Triangle. After helping hundreds of North Carolinians with estate planning, elder law, asset protection, trust and estate administration, and planning for children and adults with special needs, Mark established a legal team and firm structure at Clarity Legal Group designed specifically to support the needs of clients seeking these services. Clarity Legal Group is organized around his core beliefs that estate planning is part of a life well lived and that helping people fulfill their goals and protect their families is a unique privilege.

Alan Dickinson works in our estate planning practice, where his work reflects his background as a researcher, educator, and practicing attorney with more than 20 years' experience. Alan is committed to providing clients with exceptional clarity in the face of the unfamiliar, and forging meaningful relationships with the families he's privileged to serve. From his practice- and personal experience- Alan knows that preparing for incapacity and death is at the heart of one's personal legacy, and part of life well-lived. 

Registration opens on August 1st and closes on September 9th. 

  All Reserved
Ending 09-10-2024 @ 12 am EST

11/13 Transitioning to Adulthood: Avoid the "Cliff" with Work Together NC

7:30 pm

Transitioning to Adulthood: Avoid the "Cliff" with Work Together NC

Jacklyn Boheler, Work Together NC Project Coordinator

Work Together NC is a statewide, grant-funded initiative focused on the transition to adulthood for people with intellectual and developmental disabilities (ID/DD). The project aims to improve the quality of life of people with ID/DD and their families through (1) making it easier to navigate systems of support in the transition to adulthood and (2) increasing access to meaningful work, continued education, and community engagement. Project coordinator, Jacklyn Boheler, will provide an overview of the project activities, including the development of an IDD Inclusive Employment Alliance and employer recognition program, a Community Transition Plan, and website,, a one-stop hub for finding IDD services and resources.

Jacklyn Boheler, MS, OTR/L is the project coordinator of Work Together NC, a statewide initiative focused on improving systems involved in the transition to adulthood for people with intellectual and developmental disabilities. Jacklyn was awarded one of the 2023 Leadership and Advocacy awards through the NC Council on Developmental Disabilities. Jacklyn's areas of interest include disability inclusion/universal design in the workplace, inclusive post-secondary education, and neurodiversity-affirming approaches.

Registration opens on October 1st.

Registration closes on November 11th.

  All Reserved
Ending 11-12-2024 @ 12 am EST

12/11 Basics in Sexuality Education/Dignity of Risk

7:30 pm

Basics in Sexuality Education/Dignity of Risk

Louise Southern, PhD, LBA, BCBA

This session will outline key areas of focus within the broad sexuality education continuum, with emphasis on concepts and skills rooted in self-advocacy and social understanding. Case examples will be used to support application of instructional and support strategies. 

As the Associate Clinical Director at ASNC, Louise provides consultation, leads external training projects for the organization and delivers presentations, workshops, and ongoing coaching to school systems and service providers. She received her PhD in Curriculum and Instruction at North Carolina State University, and has worked with individuals with autism, emotional disability, intellectual disability, ADHD and other learning differences since 1988. Current areas of focus include equity in education, social emotional learning, naturalistic developmental behavioral interventions, organization-wide DEI initiatives, culturally responsive service provision, and scaling up the implementation of best practices across organizations, schools, and systems. 

Registration opens on November 1st.

Registration closes on December 9th.

  All Reserved
Ending 12-10-2024 @ 12 am EST

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