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DIPG - DMG Research Funding Alliance

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DIPG/DMG Research Funding Alliance
...Because Lives Depend On It


"DIPG DMG Research Funding Alliance (DDRFA) is made up of nearly 60 foundations, funds and families aligned to work quickly to change DIPG DMG as we know it.  Together we fund research (both basic and translational), access to trials, and the use and integration of shared data.  We are committed to collaboration by foundations, researchers, institutions, clinicians and databanks.  We know it will take all of us to eradicate the most deadly childhood cancer. DDRFA is powered by families who know all too well that lives, most often of children ages 4 -12, are depending on us.  DIPG DMG won't wait and neither will we."



CURRENT PROJECT:  SonALAsense Clinical Trial.


Together we are working on a special need.  The SonALAsense clinical trial is at risk of closing.  Several children have used this trial for over a year without tumor growth!!  Already through your donations we are keeping the SonALAsense clinical trial open through May! Can you help us keep it open even longer?


The Phase II clinical trial is proving able to stabilize tumors for a period of months and is also to reverse symptoms in some early participants we have observed.  These are children who have left their wheelchairs behind and are using their hands better after treatment.  We've seen kids eye not turn in as far, correcting double vision.  Most importantly in the vast majority of kids treated, the tumor is NOT growing between treatments!  The clinical trial allows patients great quality of life as they are able to go to school, birthday parties and enjoy their families without long hospital stays, chemotherapy or immunocompromised condition.  In DIPG, a drug or treatment has not been approved for over 60 years!  Kids deserve a chance at longer life and better quality of life. If you have looked DIPG in the face, you know well kids need a cure.  Until there is a cure, we need trials that give kids the best chance to live.


Please help if you are able and share the need.  $20, $40, $60 truly helps.  In fact with 5000 people giving just $60 we WILL save this trial!


You can learn more at https://www.sonalasense.com/ and you watch a video with children of the trial at https://www.youtube.com/watch?v=GhhiK9TNVqs.   



DDRFA is administered by Tough2gether Foundation having the not-for-profit EIN of 92-1204987.

Checks may be mailed to Tough2gether Foundation, 1600 Poyntz Ave, Manhattan, KS 66502. Thank you for your support!

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Recent Activity

Name Brian Schwettman
Activity Type Donation(Recurring), Mailing list
Amount $120.00
Date 10/06/24
Name Janell Royer
Activity Type Mailing list
Amount -
Date 09/28/24
Name Sheri Moore
Activity Type Donation, Mailing list
Amount $25.00
Date 09/23/24
Name Emily’s Light
Activity Type Mailing list
Amount -
Date 09/18/24
Name Rosemary Goosley
Activity Type Donation(Recurring)
Amount $50.00
Date 08/21/24

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Updates

SonALAsense Clinical Trial

April 25, 2024

Thank you, Thank you to every single person who has donated!  Over $15,000 was raised in just a few days from 141 people!  Additionally, several foundations are putting money into this effort.  We were able to make the first payment of 3 to SonALAsense to keep funding the clinical trial.  This will keep current and newly enrolled patients able to continue treatment.


Our next payment of $200,000 will be due May 22.  We will need help spreading the word to raise these funds.  However, everyone from patients, to patient advocates, the company and our doctors are working to keep this going.  Please continue to help if you can.  We need to see what this trial can do for our kids who need a cure so badly.  


Thank you for generously giving.



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