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Josie's Stocking Fundraiser for AHF

This Giving Tuesday and during the Christmas season we are raising money for The Allo Hope Foundation. Many of you joined us last year in filling Josie’s stocking through these donations and it was so meaningful to see her stocking full of cards from the people who love her on Christmas morning. I have been looking forward to doing this again all year. It helps us honor Josie and it helps save other babies’ lives. Please join us in sharing HOPE with those who need it most by contributing to Josie’s Fundraiser. If you would like to hear more about our story, keep reading, if you’d like to see how to make a donation and where your funds go, skip to the end! Each donation made, no matter how small, puts a card into Josie’s stocking! 

 

Our Story

Our daughter Josie Anne died from untreated HDFN as a result of missed prevention followed by a missed diagnosis. With proper care she might have lived. Josie would have been a year and a half old, celebrating her second Christmas with us this year. 

 

The Allo Hope Foundation has been our biggest support since Josie died. They have walked with us through our darkest days, joined us in honoring Josie’s first birthday with our biggest and most special blood drive yet, shared Josie’s story to medical professionals around the globe to prevent losses like hers from happening to other families, and they helped us navigate the complications we faced in our next pregnancy with Noah. 

 

Noah is one of so many babies whose life was saved as a direct impact of the work the Allo Hope Foundation does. They connected us with the best medical experts and gave us a complete roadmap for how to ensure Noah received the right care from preconception to pediatric care. My pregnancy with Noah required 8 surgeries (4 of which were fetal blood transfusions), 21 IVIG infusions, 6 rounds of plasmapheresis, I spent the 3rd trimester admitted to the hospital under continuous monitoring before finally welcoming our miracle a month early! But our journey didn’t stop there. We then spent 2 weeks in the NICU. Noah received a round of IVIG at 12 hours old, 7 days of intensive phototherapy, and has since received 3 more blood transfusions. At 4 months old he finally had his blood counts rise on their own for 2 blood draws in a row (a sign that we are now able to put his HDFN journey behind us forever). 

 

Alloimmunization (mom’s condition) is largely preventable and HDFN (baby’s condition) is very treatable with great outcomes, even if some of the more severe pregnancies like ours take a lot of intervention. But these babies can only be saved if patients and providers are aware of the right care and monitor/treat in time. This is where the Allo Hope Foundation has been crucial. AHF has helped entire countries make leaps and bounds of progress in a very short amount of time. Just this month (Nov 2024) specialists from all over the US came together to create Consensus Guidelines for the management of this condition. This is monumental for care in America!! The Allo Hope Foundation was instrumental in making this happen and advocating for the right guidelines. 

 

Where your money goes: 

Your donation will be used to provide access to prevention and care for alloimmunization and HDFN worldwide. This year’s fundraiser will focus on supporting underserved patients and proceeds will go towards providing support, resources and education to patients in both the United States and around the world.

 

Donors to Josie’s Stocking will have their name written on a card and placed inside her stocking on Christmas Eve, so that it can be full this Christmas alongside Noah’s stocking. If you would like to add an optional message for the card in Josie’s stocking, please use the “words of support” option when donating through Facebook or the “make a tribute gift” when donating through Flipcause. 

 

Where does your hope go? Last year’s stocking funds were used to support the following initiatives and provide lifesaving resources to those who need it most:

 

1. Rhesus Solution Initiative (RSI): Organization that supports awareness and administration of Rh Immunoglobulin for Rh-negative pregnant women to help prevent HDFN in Nigeria.

2. ICT Testing: Funded accurate antibody screening for 19 women in Kenya, necessary for diagnosis. 

3. Rh Immunoglobulin Doses in Kenya: Provided 5 doses of Rh Immunoglobulin monthly to Rh-negative pregnant women, helping provide access to a medication that is otherwise often unattainable due to cost. 

4. Saving Njeri: Assisted in relocating a mother to Ethiopia for life-saving treatment, resulting in the successful birth of her daughter, Njeri. Quote from Essie, Njeri’s Mother: “I want to take this chance to thank the Allo Hope Foundation for the way they walked with me throughout my pregnancy and even after delivery. If not for their support both financially and emotionally I don't think my baby would be alive. My baby girl is now one year old and very healthy, I will forever be grateful to God that I met this group after having 2 stillbirths my hope was restored. My heart is full of gratitude.”

5. Collaboration with the O Negative Foundation: Contributed to a network of O-Negative blood donors in Kenya, improving access to emergency blood donations for IUTs and post birth transfusions 

 

Thank you so much for your generous gift. We hope you have a beautiful and hopeful holiday season. 


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