Grand to Grand Ultra
We will be running the Grand 2 Grand Ultra once again this year.
We started running marathons back in 2014, and they have helped fund studies and assist Duchenne families in need.
Jamesy is 10 years old and still walking. It’s bittersweet to say, but Jamesy was denied entry into 3 different trials at this time, because he is too strong. I am proud to share while other children are in wheelchairs by this age, Jamesy is still walking and not showing any signs of slowing down.
This is why we need your continued support.
I bring up this milestone to let you all know that your dedication to fighting Duchenne is moving the needle in the right direction.
I am proud to say since the Phase I study with the University of Minnesota, we are now funding a Phase II study with mHBOT and Compound JAR914. We have 4 other boys now enrolled into the study: Kal / Drew / Jaco / Alfie and Jamesy.
JAR of Hope is supporting all the expenses in the study from providing chambers to children in the study, travel expenses and the infusions. JAR of Hope is proud to be helping families all over the world. Kal is coming from California. Jaco is from S. Africa and Alfie Ireland. Even though Jamesy and Drew are reginal there are still travel expenses getting them into NYC.
We are excited to add this race to our portfolio of races JAR of Hope participates in to spread awareness and raise funds for this study.
Thank you for participating in this inaugural event with Teamjamesy.
“The two most important days of your life are: the day you were born and the day you realize why”
FOR MORE INFORMATION CONTACT: JAMES@JAROFHOPE.ORG