We are Stronger Together
Make a rare impact today
The rarest day of all, February 29, is Rare Disease Day, which makes this the perfect time of year to show your support for rare groups, such as the GAND community! To date, GATAD2B-associated neurodevelopmental disorder (GAND) has been identified in over 155 individuals worldwide. More than 90% of them are children. Despite being such a small group, this number is growing steadily, and research is already underway to study human cellular and animal models of GAND. This research is vital to better understanding GAND and pursuing possible treatment options in the future.
Helping Hands for GAND was established in 2015 with a mission to support individuals and families affected by GAND, to increase awareness, and to work toward research and treatment opportunities to enrich the lives of those with this rare genetic condition. We're very proud of what we have already accomplished, and we are eager to make progress on our goals for 2020. These goals include:
- launching a patient registry (which is currently being developed)
- hosting the 3rd GAND Gathering & Scientific Conference this July, bringing together families & researchers
- creating new, updated informational materials for families, friends, and care providers
- awarding a second research grant to study models of GAND
Please help us fulfill our mission with your support today! A generous anonymous donor has pledged to match your gifts in this campaign up to $50,000! This means that every dollar you give from now through the end of March goes even further to help the GAND community! And because our 501(c)(3) nonprofit organization is entirely volunteer-run, you can be sure that your tax-deductible gift (for U.S. donors) is going straight to the goals listed above, with the majority of funds going to research.
To make a lasting impact, we need donors like you to support our efforts. We also need fundraisers like you to set up your own fundraising page for this campaign and share with your family, friends, and co-workers. Share your story! Tell us how GAND has impacted you or your loved ones. Help us raise awareness and support for this rare disorder and make a difference in the lives of the GAND community!
Will you help us maximize this amazing matching pledge of $50,000?
Please set up your personal campaign page today. It's fast and simple! To show our appreciation, we will send 5 silicone awareness bands to everyone who joins the campaign and shares their personal fundraising page to social media. In order to receive your bands, be sure your post is made public and tag Helping Hands for GAND (@GATAD2B). Wristbands will be shipped in April.
For GAND families attending our 3rd GAND Gathering & Scientific Conference, if you raise $1,000 or more on your personal campaign page, you will receive a coupon code for $100 off Gathering registration for yourself or a GAND family of your choice!
This campaign's top fundraiser will receive free registration for their entire immediate family (or a GAND family of your choice) to the 3rd GAND Gathering & Scientific Conference!
What are you waiting for? Get started on your personal campaign now! Let's work together to make a rare impact for the GAND community!