Lily was diagnosed with T1D October 10, 2015 at 5 years old. After a late night trip to an after hours care pediatric center, she was sent to Arnold Palmer Children's Hospital where we discovered she was in diabetic ketoacidosis, with extremely high blood glucose numbers. If we had only known the warning signs of someone who has T1D, we may have been able to catch it sooner than her going into DKA. After a 3 day stay, we went through a crash course in type 1 diabetes care and our world was forever changed. She is now 7 years old and manages everything with a positive attitude. Lily uses the Omnipod pump (changed every 3 days) for her insulin and a Dexcom continuous glucose monitor (changed about every 7-10 days). The Omnipod inserts a small cannula under the skin in which to administer your insulin. The Dexcom also inserts a sensor under the skin that reads glucose levels every five minutes. We still do about six finger pricks a day to check her blood glucose level. The Dexcom has been a lifesaver and extremely useful tool, as its alarms have woken us up in the middle of the night with low blood glucose warnings (which can be extremely dangerous!)
Many don't realize this is a 24/7/365 disease. We are never on a break. Everyday is different from the next. It is something we all must manage ALL day long by counting carbs to be consumed, ensuring she is dosed with insulin properly, all while trying to maintain a good range of blood glucose levels. Insulin is life saving for a type 1 diabetic and they could not survive without it. There is no treating it with diet changes, exercise, or magic cures. Right now Type 1 is forever. We will always be hopeful for a cure!
Lily lives life to the fullest and doesn’t let diabetes stop her from anything. She loves doing gymnastics, dancing, being with her family, and going to Disney!
"Kids & Teens with Diabetes" is a program which offers an opportunity for children and teens living with Type 1 Diabetes to build lasting friendships, gain dance experience, and let loose in a fun, safe, and encouraging environment. Members of the program participate in a series of free dance classes each Fall that conclude with a performance in our live annual show, "Dancing for Diabetes."
You can support this year's program by making a general donation below or through "sponsoring" one or more of our participants above. We hope you will then join us all on Saturday, December 9 at the Bob Carr Theater in Orlando for the 17th Annual Dancing for Diabetes showcase as we cheer on these inspiring Type 1 Warriors! Tickets are available at drphillipscenter.org.
Dancing for Diabetes spreads awareness through the art of dance to better educate the community, raise funds to find a cure and inspire those with diabetes to live healthy and active lives. Learn more at www.dancing4diabetes.com.