Help Me Save One Brain At A Time
by Andrea De La Torre
Supporting: peer to peer fundraiser for My PKU Awareness Foundation
$1000.00
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On March 2015 an angel was born, her name is Amberly Angelina.
Seven days later we received an alarming call, asking us to rush to the Texas Children's Hospital.
When we arrived the doctors communicated to us that Amberly was diagnosed with PKU.
Per Mayo Clinic PKU short for Phenylketonuria is a "birth defect that causes an amino acid called phenylalanine to build up in the body. While the US screens newborns for phenylketonuria, most countries don't. Untreated phenylketonuria can lead to brain damage, intellectual disabilities, behavioral symptoms, or seizures. Treatment includes a strict diet with limited protein."
Our whole world changed and it felt like the end of the world. We have grown our strength to let the world know about Amberly Angelina's life with PKU.
As time went by we have meet some amazing people who have helped us realize that she is a blessing from God just like Mia Bella and life will be perfect.
All the blessings gave us strength to start a 501c3 not for profit organization to raise awareness of PKU and help one family at a time to save their PKUer's brain and allow them to have the most amazing life.
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