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Colleen Foy

Supporting: Love Some1 with Glut1 2022 for Glut1 Deficiency Foundation

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Colleen was diagnosed 14 years ago!! She started the medical ketogenic diet & became seizure free. Prior to her starting the diet she was having 75- 100 seizures a day. The diet has been life changing for Colleen. She started walking independently and  became seizure free. We counted down the days as we witnessed her become seizure free. We celebrated 1 year of her being seizure free on St Patrick's Day. Colleen's seizures did return 3 1/2 years later. Colleen's days are challenging, but we are blessed with our Glut 1 family. We are also blessed with the support of family & friends. The funds raised during our Rare Disease campaign are so helpful for our Glut 1 families & research. Thank you for always supporting & caring 

Each year, from Valentine's Day to Rare Disease Day, the Glut1 Deficiency Foundation hosts the Love Some1 with Glut1 campaignIt is an important opportunity to increase awareness and educate others about this rare disease while raising essential funds to help better serve the needs of our patient community through our mission programs.


In addition to our regular activities, we are working on some big and important goals for 2022

  • host our 9th family conference to bring families together to meet, share, and learn 
  • host our 2nd scientific convening for researchers and clinicians to exchange knowledge and ideas 
  • launch our Research Roundtable program to build a collaborative research network 
  • begin implementing and funding our newly developed patient-led Research Compass
  • launch a natural history study to better understand life-long patient experiences
  • expand our educational exhibits to reach and teach new audiences of medical professionals
  • create a new website to serve as a hub for information, support, connection, and hope


All of this year's campaign donations will be used to drive research progress and provide funding for projects in our new Research Compass.

Thank you for your part in helping us reach our goals and supporting our mission as we continue our work to bring help and hope to everyone, everywhere, who is affected by Glut1. 


Shine Like Some1 with Glut1






learn more about Glut1 Deficiency

from our brochure here














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