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Lennox's Journey with Nephrotic Syndrome, Please Help us to find a cure!

by Derek & Hailey Sykes

Supporting: We Hope for The Nephrotic Syndrome Foundation

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Lennox was diagnosed with Nephrotic Syndrome (a rare kidney disease) in September, 2021. We noticed Lennox (1 year old) was getting very swollen, mainly around his eyes. We called his pediatrician and they told us it was most likely allergies. After about a week he was even more swollen and I called again and they said allergies once more. My mama intuition knew that something was not right. We then took him to the emergency room where they diagnosed him with Nephrotic syndrome, something I had never heard of… gave us some steroids for him to take and sent us home. The next day he was blown up like a sumo wrestler and we took him back to the emergency room (we should have never been sent home). From there he was so swolllen that he had a seizure and was admitted to the PICU (pediatric ICU). We spent 3 days there, relieving his swelling and helping his poor little body get healthy again. Once the swelling had gone down, he was then admitted to the pediatric hospital unit for another 3 days to be monitored and find a medicine regime that would work. Lennox was then put on steroids and blood pressure medicine for the next 4 months.


I am proud and so blessed to say that his body responded to the medicine (thank God) and he is now in remission since January. We are so grateful for all of the staff that helped us, our nephrologist, our family and friends support and everyone praying for our baby and most importantly God. Nephrotic Syndrome is such a yucky, unknown thing and I am so grateful for the Nephrotic Syndrome Foundation for creating a place of hope and light in such a dark disease. We are also so proud of our strong boy, Lennox. He amazes me and makes us stronger every day.


 Please help us in finding a cure for this disease and please continue Praying for Lennox and all the other Nephrotic Syndrome warriors! 

 

Your donation will help to find a cure for NS, funding the “Backpacks of Hope” program put on by NSF, NSF camps & more! Thank you!

All We Hope Ambassadors



Our Mission: The Nephrotic Syndrome Foundation is a non-profit organization supporting those diagnosed with Nephrotic Syndrome, their families, and the ongoing search for a cure.


Background: Nephrotic Syndrome is a serious and rare auto-immune disease that attacks the kidneys causing them to shut down. There is no known cause or cure. Treatments are extremely limited and consist primarily of steroids and cancer and transplant medications. Many patients are children who spend a major part of their life in and out of the hospital, trying to find a treatment that keeps them in remission while managing the side effects. Receiving this diagnosis is life-changing. It can take the breath out of any parent or child who finds themselves in this situation. Our goal at NSF is to meet each family and child in these tough times and lift each one up as best we can by providing financial and emotional support to help them weather the times to better health, acceptance, and adjustment.


Our Work: NSF offers eight programs to uphold our mission and support children diagnosed with this disease and their families. Those programs include:

  • Backpacks of Hope - A backpack of comfort items and medical supplies provided to newly diagnosed patients or those who have been battling in this fight without support (each valued at over $300).
  • NSF’s Finding Health Series - An ongoing series offering content, education and wellness segments, sessions and seminars on topics related to the NS journey.
  • NSF’s Peer Team -  A group of older teens and young adults with NS who support younger patients in their journey.
  • Thermometer Program - A hospital-grade thermometer provided to patient families ($300+ value).
  • Camp NSF - An annual camp, 100% free, for patients, siblings & families that takes place in Livermore, CA.
  • Direct Patient Grants - Support for costs related to caring for a child with NS.
  • Little Angels - An unsolicited care package program for young warriors.
  • PodcastInspirational and authentic stories of warriors living with Nephrotic Syndrome.

Thank you for choosing to be the light for those battling Nephrotic Syndrome.






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