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Stella's NSF Journey

by Karli Bumpass

Supporting: We Hope for The Nephrotic Syndrome Foundation

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In July we began to notice that Stella starting having sporadic swelling in her eyes and face. Over the next several months we were in and out of different doctors offices and the emergency room trying to find answers. Her symptoms continued to get progressively worse so we made a trip to OU Children's Hospital where she was diagnosed with Nephrotic Syndrome on October 6, 2021. Nephrotic Syndrome has no known cause or cure and at a time when we were so scared and unsure the Nephrotic Syndrome Foundation gave us information and support, they gave us Hope. We would like to do our part to raise awareness and funds to give back to this Foundation that raises awareness and is fighting for a cure.  

All We Hope Ambassadors



Our Mission: The Nephrotic Syndrome Foundation is a non-profit organization supporting those diagnosed with Nephrotic Syndrome, their families, and the ongoing search for a cure.


Background: Nephrotic Syndrome is a serious and rare auto-immune disease that attacks the kidneys causing them to shut down. There is no known cause or cure. Treatments are extremely limited and consist primarily of steroids and cancer and transplant medications. Many patients are children who spend a major part of their life in and out of the hospital, trying to find a treatment that keeps them in remission while managing the side effects. Receiving this diagnosis is life-changing. It can take the breath out of any parent or child who finds themselves in this situation. Our goal at NSF is to meet each family and child in these tough times and lift each one up as best we can by providing financial and emotional support to help them weather the times to better health, acceptance, and adjustment.


Our Work: NSF offers eight programs to uphold our mission and support children diagnosed with this disease and their families. Those programs include:

  • Backpacks of Hope - A backpack of comfort items and medical supplies provided to newly diagnosed patients or those who have been battling in this fight without support (each valued at over $300).
  • NSF’s Finding Health Series - An ongoing series offering content, education and wellness segments, sessions and seminars on topics related to the NS journey.
  • NSF’s Peer Team -  A group of older teens and young adults with NS who support younger patients in their journey.
  • Thermometer Program - A hospital-grade thermometer provided to patient families ($300+ value).
  • Camp NSF - An annual camp, 100% free, for patients, siblings & families that takes place in Livermore, CA.
  • Direct Patient Grants - Support for costs related to caring for a child with NS.
  • Little Angels - An unsolicited care package program for young warriors.
  • PodcastInspirational and authentic stories of warriors living with Nephrotic Syndrome.

Thank you for choosing to be the light for those battling Nephrotic Syndrome.






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