Sin Bin Kidneys - Raising Awareness for Kidney Disease

by Diana Sharpstene




Campaign has ended


My name is Diana Sharpstene. My son Bradley was diagnosed with secondary Nephrotic Syndrome with primary focal segmental glomerulosclerosis (FSGS) in October of 2021. He is currently a peritoneal dialysis patient and will be needing a kidney transplant soon. Bradley is a hockey player, currently with the Center State Stampede. Dialysis has been able to help him get back on the ice to play the sport he loves. He also loves to spend time in the Penalty Box which is why we are naming this event the Sin Bin Kidneys - Awareness Walk.
The Nephrotic Syndrome Foundation is a non-profit organization supporting those diagnosed with Nephrotic Syndrome, their families and the ongoing search for a cure. 
The Nephrotic Syndrome Foundation has welcomed us into their family with open arms!!! Bradley has already received a Backpack of hope with special gifts for his little brother as well. He continues to get homemade cards and amazing thoughts and prayers!!
We are hosting an Awareness walk/Vendor Fair on Saturday March 19th at the Rome Free Academy in Rome, NY to raise awareness for Kidney Disease. 
If you are interested in helping us reach our goal please do so here or you can contact me through email ([email protected]).

Thank you so much from the bottom of our hearts and kidneys! 

All We Hope Ambassadors

Our Mission: The Nephrotic Syndrome Foundation is a non-profit organization supporting those diagnosed with Nephrotic Syndrome, their families, and the ongoing search for a cure.

Background: Nephrotic Syndrome is a serious and rare auto-immune disease that attacks the kidneys causing them to shut down. There is no known cause or cure. Treatments are extremely limited and consist primarily of steroids and cancer and transplant medications. Many patients are children who spend a major part of their life in and out of the hospital, trying to find a treatment that keeps them in remission while managing the side effects. Receiving this diagnosis is life-changing. It can take the breath out of any parent or child who finds themselves in this situation. Our goal at NSF is to meet each family and child in these tough times and lift each one up as best we can by providing financial and emotional support to help them weather the times to better health, acceptance, and adjustment.

Our Work: NSF offers eight programs to uphold our mission and support children diagnosed with this disease and their families. Those programs include:

  • Backpacks of Hope - A backpack of comfort items and medical supplies provided to newly diagnosed patients or those who have been battling in this fight without support (each valued at over $300).
  • NSF’s Finding Health Series - An ongoing series offering content, education and wellness segments, sessions and seminars on topics related to the NS journey.
  • NSF’s Peer Team -  A group of older teens and young adults with NS who support younger patients in their journey.
  • Thermometer Program - A hospital-grade thermometer provided to patient families ($300+ value).
  • Camp NSF - An annual camp, 100% free, for patients, siblings & families that takes place in Livermore, CA.
  • Direct Patient Grants - Support for costs related to caring for a child with NS.
  • Little Angels - An unsolicited care package program for young warriors.
  • PodcastInspirational and authentic stories of warriors living with Nephrotic Syndrome.

Thank you for choosing to be the light for those battling Nephrotic Syndrome.

How would you like to support?