Jennifer's Fundraiser for GAND

by Jennifer Martin




In 2014, our youngest two children were diagnosed with GAND, a rare neurodevelopmental disorder. Since then, we've met an amazing community of fellow GAND families and learned so much about this genetic condition affecting approximately 295 individuals worldwide. We're so grateful for Helping Hands for GAND, a volunteer-run nonprofit charity and the only organization in the world with a mission to support the GAND community specifically. HHFG's mission means so much to my family, and I hope you'll join us in supporting them.

Since 2019, HHFG has awarded a total of $100,000 in research grants for studies now underway. They also host conferences, maintain a growing support network, and are currently developing a patient registry. Please help us support the continuation of these and other important projects. With two children growing up with the challenges presented by GAND, our family is grateful for your support of our rare community! Thank you so much for your help!

On February 28, we hope you'll join us in observing World Rare Disease Day. This is the perfect time of year to show your support for rare groups, such as the GAND community! To date, GATAD2B-associated neurodevelopmental disorder (GAND) has been identified in approximately 295 individuals worldwide. More than 90% of them are children. Despite being such a small group, in 2022, we welcomed nearly 60 newly identified cases into our community.

Helping Hands for GAND was established in 2015 with a mission to support individuals and families affected by GAND, to increase awareness, and to work toward research and treatment opportunities to enrich the lives of those with this rare genetic condition. Since then, we've accomplished a lot, including hosting 5 conferences and facilitating $140,000 in research grants for GAND studies. Please partner with us to continue supporting this important work. This year, we're counting on your help to host another conference, launch our patient registry, continue supporting GAND research, and much more.

To make a lasting impact, we need donors like you to support our efforts. We also need fundraisers like you to set up your own fundraising page for this campaign and share with your family, friends, and co-workers. You can even captain your own fundraising team! Share your story! Tell us how GAND has impacted you or your loved ones. Help us raise awareness and support for this rare disorder while funding research which can give us new insights into our children's challenges!

Please set up your personal campaign page today. It's fast and simple! To show our appreciation, we are giving away a $25 Amazon gift card to one randomly drawn fundraiser. To be eligible for the drawing, you must: 1) create your own fundraising page from this campaign, 2) share it to social media (audience should be set to public), and 3) tag Helping Hands for GAND in your post. That's it! The gift card will be sent by the end of March.

Our TOP fundraiser will receive one free GAND shirt from our Bonfire store. 2nd place will receive one Helping Hands for GAND water bottle. 3rd place will receive a Helping Hands for GAND cooler bag.

What are you waiting for? Get started on your personal campaign now! Let's work together to make a rare impact for the GAND community!

How would you like to support?