Share

banner
banner
6423300d00f07_Screenshot-2023-03-28-at-2.png

Jar of Hope

by Angelina Mata

$2000.00

FUNDED

 

Campaign has ended

Supporters

Anything Helps!!

I'm running for Duchenne muscular dystrophy also known as DMD which is a muscle wasting disease. This will be the second year I’m running for DMD. The first time I ran for DMD I was so proud to be a part of a wonderful foundation that wants to improve the lives of children. It was an honor to meet families that I would be running for. Getting to meet some family's has had such a big impact on my heart and now all I see when I run is the boys I'm running for. For this race I will be running four races at Disneys Marathon weekend adding up to a total of 48.6 miles. I wanted to do more than what I did the previous year and be able to tell more people about Duchenne. DMD is a progressive muscle weakening disease. DMD affects about 300,000 children and 92% being boys worldwide with no cure. By the time the boys are 10 to 14 they lose the ability to walk having them be in wheelchairs. By their late teens they lose their upper body strength including their ability to move their arms. Overtime their respiratory system weakens and they require constant support. Young men with DMD have shorter life expectancy’s but there is advances in the management of the condition that increase their life span and enabled young men to live more independent lives then before. Jar Of Hope was started in 2013 when James Anthony Raffone (Jamesy), was diagnosed with Duchenne muscular dystrophy at the age of four. Today he is fourteen years old and is part of a clinical trial at the University of Florida that is a Stem Cell Clinical Trial to help improve the quality of life. All the support you give goes to Jar of Hope and helps the Clinical Trial anything you can give helps change James's life and many other children.

Please watch the video for more information on Duchenne and together we can change a child's life

https://youtu.be/GCnc3BmAtyc

Jar of Hope Page

https://www.jarofhope.org/


JAR of Hope is running its 7th consecutive runDisney Marathon Weekend. We are running this event bc Jamesy and 11 other boys are going to be in a clinical trial at the University of Florida. Yes, this is going to be the first of its kind Stem Cell Clinical Trial to see if we can improve the quality of life. We want to make a HUEG IMPACT in this disease. No child has ever survived Duchenne. Its been 200 years and we need to change that! Thanks to everyone on this team this year we are going to do just that! 


Thank you from the bottom of my heart for joining this team and giving me the opportunity to help save my son's life and other people alike. 

 

Warmest regards, 

How would you like to support?

Comments

loader