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Running to Save Jamesy's Life

by Jim Raffone

$2500.00

FUNDED

 

Campaign has ended

Supporters

This is going to be my 7th consecutive runDisney Marathon Weekend running for JAR of Hope, Jamesy and all the children living with Duchenne. I am so grateful for this opportunity to run. The Lord has blessed me with the opportunity to fight for my son and fight I will. 


Thank you to all those who have supported us along the way! Lets continue to take steps closer to finding a cure for Duchenne and saving the first child.


Thank you!! 

JAR of Hope is running its 7th consecutive runDisney Marathon Weekend. We are running this event bc Jamesy and 11 other boys are going to be in a clinical trial at the University of Florida. Yes, this is going to be the first of its kind Stem Cell Clinical Trial to see if we can improve the quality of life. We want to make a HUEG IMPACT in this disease. No child has ever survived Duchenne. Its been 200 years and we need to change that! Thanks to everyone on this team this year we are going to do just that! 


Thank you from the bottom of my heart for joining this team and giving me the opportunity to help save my son's life and other people alike. 

 

Warmest regards, 

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