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Stacy Ramsey

by Stacy Ramsey

$2000.00

FUNDED

 

Campaign has ended

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When I set out to find a charity for the Dopey Challenge 2024, I knew when I came across JAR of Hope that I found the right one for me. This charity spoke to me. Being a mom to two very active boys I couldn't imagine the heartache that this disease creates and the fact that there is no cure is heartbreaking.


(Taken from JAR of Hope website)

Duchenne muscular dystrophy (DMD) is one of the rarest diseases on Earth. DMD is a fatal, muscle-wasting disease you are born with. It occurs once in every 3,500 live births and effects mostly boys. In the United States, with a population of over 330,000,000 people, only about 20,000 children are stricken with Duchenne. And there is no cure.


The goal of JAR of Hope is to raise money to find a cure for this rare disease. 

One way they raise money is thru organized fundraising events like Run Disney.


Please find it in your heart to donate to this wonderful charity and help raise money to find a cure for this rare disease!!!


Please watch the video link below for the story about James Anthony Raffone (Jamesy)
 
https://youtu.be/GCnc3BmAtyc

JAR of Hope is running its 7th consecutive runDisney Marathon Weekend. We are running this event bc Jamesy and 11 other boys are going to be in a clinical trial at the University of Florida. Yes, this is going to be the first of its kind Stem Cell Clinical Trial to see if we can improve the quality of life. We want to make a HUEG IMPACT in this disease. No child has ever survived Duchenne. Its been 200 years and we need to change that! Thanks to everyone on this team this year we are going to do just that! 


Thank you from the bottom of my heart for joining this team and giving me the opportunity to help save my son's life and other people alike. 

 

Warmest regards, 

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