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Danny Van den Essenburg

$2000.00

FUNDED

 

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I’m Danny and in love with running and Disney.

I love to do this for a good cause like the Jar of Hope. The goal is to find a cure for Duchenne muscular dystrophy (DMD). Every little bit helps.

JAR of Hope is running its 7th consecutive runDisney Marathon Weekend. We are running this event bc Jamesy and 11 other boys are going to be in a clinical trial at the University of Florida. Yes, this is going to be the first of its kind Stem Cell Clinical Trial to see if we can improve the quality of life. We want to make a HUEG IMPACT in this disease. No child has ever survived Duchenne. Its been 200 years and we need to change that! Thanks to everyone on this team this year we are going to do just that! 


Thank you from the bottom of my heart for joining this team and giving me the opportunity to help save my son's life and other people alike. 

 

Warmest regards, 

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