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A 25-year-old patient of mine passed away from Duchenne muscular dystrophy.

by Steven Applebaum

$1000.00

FUNDED

 

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Supporters

On January 7th, I will be running a 26.2-mile marathon for the charity Jar of Hope (https://www.jarofhope.org) whose mission it is to provide support and find a cure for patients with Duchenne Muscular Dystrophy (DMD). Jar of Hope is currently running clinical trials at the University of Florida, and they need our help. My goal is to raise $1,000 which will go directly to the organization.

 

As a senior physician who cares for patients with DMD, I know firsthand the struggles they and their families face. That's why I've decided to raise money for JAR of Hope to honor a 25-year-old patient of mine who died from DMD.  I will run this marathon and hopefully deliver my pledge or more.  This is a huge challenge for me and I have spent the past few years training, but I am willing to push myself to the limit to make a difference in the lives of those with DMD.

 

DMD is a fatal, genetic disorder of progressive muscle degeneration. It primarily affects boys who are often wheelchair bound by age 12. It is an awful disease. The wasting of muscles includes those used for breathing and thus respiratory failure is a leading cause of death in DMD patients. My patient also had extreme sadness and anxiety.

 

JAR of Hope is a top-rated organization for Accountability and Finance by Charity Navigator. Please visit their website for more information:

https://www.jarofhope.org. With your help, we can make a difference in the lives of those who are affected by this disease. Please donate any amount so that you and I can make a difference.

 

Thank you for your support!

 

Dr. Steven Applebaum


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JAR of Hope is running its 7th consecutive runDisney Marathon Weekend. We are running this event bc Jamesy and 11 other boys are going to be in a clinical trial at the University of Florida. Yes, this is going to be the first of its kind Stem Cell Clinical Trial to see if we can improve the quality of life. We want to make a HUEG IMPACT in this disease. No child has ever survived Duchenne. Its been 200 years and we need to change that! Thanks to everyone on this team this year we are going to do just that! 


Thank you from the bottom of my heart for joining this team and giving me the opportunity to help save my son's life and other people alike. 

 

Warmest regards, 

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