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So why Jar of Hearts the answer is simple
Because no child should have to suffer like this.
Duchenne muscular dystrophy (DMD) is one of the rarest diseases on Earth. DMD is a fatal, muscle-wasting disease you are born with. It occurs once in every 3,500 live births and effects mostly boys. In the United States, with a population of over 330,000,000 people, only about 20,000 children are stricken with Duchenne. And there is no cure.
Our goal is to find a cure for Duchenne muscular dystrophy. With organized fundraising events and support from you, we can continue our mission and turn the dream of finding a cure into a reality.
So please support me as i runDisney
JAR of Hope is running its 7th consecutive runDisney Marathon Weekend. We are running this event bc Jamesy and 11 other boys are going to be in a clinical trial at the University of Florida. Yes, this is going to be the first of its kind Stem Cell Clinical Trial to see if we can improve the quality of life. We want to make a HUEG IMPACT in this disease. No child has ever survived Duchenne. Its been 200 years and we need to change that! Thanks to everyone on this team this year we are going to do just that!
Thank you from the bottom of my heart for joining this team and giving me the opportunity to help save my son's life and other people alike.
Warmest regards,
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