JAR of Hope

by Danielle Sorbara




Many of you know me, and know how much fitness means to me. The ability to walk, move and exercise is something I never take for granted. Discovering running later in my life has been such an amazing blessing. The friendships and experiences that running has given me is unmatched. While I love signing up for races for the sport of it, I was compelled to run my next races fundraising for Jar of Hope. Being a charity started by a dad in my town of Manalapan, trying to save his son, his Jamesy’s life, who was diagnosed with Duchenne Muscular Dystrophy. 

“Duchenne muscular dystrophy (DMD) is one of the rarest diseases on Earth. DMD is a fatal, muscle-wasting disease you are born with. It occurs once in every 3,500 live births and effects mostly boys. In the United States, with a population of over 330,000,000 people, only about 20,000 children are stricken with Duchenne. And there is no cure.

Our goal is to find a cure for Duchenne muscular dystrophy. With organized fundraising events and support from you, we can continue our mission and turn the dream of finding a cure into a reality.”

I can’t imagine waking every morning and putting one foot in front of the other like James and Karen, along with their daughters do. The strength and unrelenting passion that goes into everything they do in their mission to save the first child with Duchenne is nothing sheer of remarkable. 

Please consider donating anything you can as I will be running the 5k and 10k races in January at Disney with the hope that maybe a dollar I raised helped save a child. No amount is too small. A bunch of a little something adds up to something remarkable. And maybe I’ll bake you up some cookies as a big ole thank you

JAR of Hope is running its 7th consecutive runDisney Marathon Weekend. We are running this event bc Jamesy and 11 other boys are going to be in a clinical trial at the University of Florida. Yes, this is going to be the first of its kind Stem Cell Clinical Trial to see if we can improve the quality of life. We want to make a HUEG IMPACT in this disease. No child has ever survived Duchenne. Its been 200 years and we need to change that! Thanks to everyone on this team this year we are going to do just that! 

Thank you from the bottom of my heart for joining this team and giving me the opportunity to help save my son's life and other people alike. 


Warmest regards, 

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