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DMD is a fatal, genetic disorder characterized by progressive muscle degeneration. It primarily affects boys, most of whom are wheelchair-bound by age 12. Duchenne affects 300,000 boys worldwide; 20,000 children in the United States alone. These children are robbed of their childhood as they can't run and play. The simplest of movements is painful. Many don't survive past their mid-twenties.
As you can probably imagine it takes millions of dollars to find a cure. With your help, JAR of Hope supports a team of research scientists and doctors dedicated to eliminating Duchenne. We also provide support for these boys and their families.
JAR of Hope is running its 7th consecutive runDisney Marathon Weekend. We are running this event bc Jamesy and 11 other boys are going to be in a clinical trial at the University of Florida. Yes, this is going to be the first of its kind Stem Cell Clinical Trial to see if we can improve the quality of life. We want to make a HUEG IMPACT in this disease. No child has ever survived Duchenne. Its been 200 years and we need to change that! Thanks to everyone on this team this year we are going to do just that!
Thank you from the bottom of my heart for joining this team and giving me the opportunity to help save my son's life and other people alike.
Warmest regards,
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