Hello friends, family, and neighbors!
This marks the start of the biggest fundraiser for GLUT1 each year. Literally every dollar I raise goes directly to helping someone with GLUT1 through education, research, and connecting families with one another.
Below is a wonderful video showing what all your donations have done and whom you've helped! (Look for my superstar at the 9:20ish mark of the video).
If you've watched previous year's videos you should notice a huge increase in international submissions. The word about GLUT1 is getting out there and more and more people are getting their long sought after diagnosis!
This year I'm offering a tiered system for donation prizes (Kickstarter style).
$1000 donation you'll get a beautiful 12" ceramic planter filled with colorful succulents shipped right to your door. (3 available)
$500 donation two 4" ceramic planters filled with colorful succulents shipped right to your door (4 available)
$100 donation a hexagonal white 4" pot with its own bamboo tray to sit on filled with colorful miniature succulents. (6 available)
$25 to $99 donations get their name in a drawing for a set of two 4" succulent planters shipped right to your door (one available)
Please show your love for Some1 (in this case Vivian) with GLUT1!
Glut1 Deficiency is a rare genetic condition where glucose doesn't reach and fuel the brain properly, resulting in a wide spectrum of neurological issues affecting brain growth, learning, movement, speech, and often causing seizures. There are fewer than 1,000 people diagnosed in the world, but experts believe there are many, many more patients still waiting to be found. Because Glut1 Deficiency is so rare, many in the medical profession don't have the knowledge they need to diagnose and properly treat it.
There is a very effective treatment for most patients - a ketogenic diet, and the earlier patients are diagnosed and start treatment the better the outcome. As fortunate as we are to have the diet, it is not a cure, not a complete treatment, and it is not easy. We need more research for better understanding, better treatment options, and ultimately a complete cure.
The Glut1 Deficiency Foundation is working hard to bring help and hope to the Glut1 Deficiency community.
The Love Some1 with Glut1 annual campaign is our primary awareness and fundraising event. It runs from Valentine's Day (February 14th) through Rare Disease Day (February 28th), and it is an opportunity to spread awareness and raise much needed funds to help better serve the needs of the community. All donations help fund our mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.
some highlights our supporters made possible in 2017
Please help us continue our mission.
We can do so much more together than any of us can do alone.
please watch our special thank you video
Please visit our website to learn more about Glut1 Deficiency and the work of the G1D Foundation.