This year I will be running the Storm The Heavens 5K to support and raise funds for the Storm The Heavens Fund Diffuse Intrinsic Pontine Giloma (DIPG), a uniformly fatal form of Brain Cancer that affects mostly children under the age of 11.
My goal is $1,000, but my hope is to raise more money, more awareness, and possibly influence you to become a fundraiser for this very important mission.
Many of you have read and heard about the story of Philomena "Bean" Standardo who on September 15, 2016, was diagnosed with Diffuse Intrinsic Pontine Glioma, (DIPG); it is a diagnosis that comes with a median survival of just 9 months. DIPG took away Philomena’s ability to walk, talk, smile and eventually, breathe. As her mobilities declined, Philomena’s innocent mind stayed completely intact. It is an unspeakable suffering that no child should ever have to endure, and no parent should ever be forced to helplessly watch.
I am asking for a generous donation; any amount helps, because we need to put an end to the 0% survival rate of DIPG.
To find out more as to why this is so important, please click here.
Thank you very much.