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~ Emma C. ~

Supporting: 1st Annual Portrait Patron Campaign - Emma C. for Beyond the Diagnosis

Emma C. 

STXBP1 

Artist: Lawrence Gardiner 

About

For donations of $100 or more, your name will be listed on our website next to the portrait you support.


Website Portrait Patron Page



Beyond the Diagnosis began working on a project to increase research and raise awareness of rare diseases within the medical community through art. Professional artists paint portraits of children living with a rare disease; the portraits then become part of a traveling exhibit for medical schools, research institutes and hospitals. Our Beyond the Diagnosis art exhibit was first unveiled at Brown University's Alpert Medical School for the entire month of February 2015 in honor of World Rare Disease Day.


Demand for this unique exhibition has increased 500% in the past three years. The exhibit continues to grow and inspire both the medical community and researchers to increase efforts in rare disease research and treatments. This exhibit has also touched the hearts and minds of the general public. Since the debut, Beyond the Diagnosis has visited the NIH, Broad Institute, Hofstra Medical, Harvard Medical, the FDA and many more.


Our Beyond the Diagnosis art exhibit has been featured in articles in the Boston Globe, STAT News, the Rhode Island Medical Journal and many more. We were also a featured story on CBS Sunday Morning with 7 million viewers. In October, we were featured in the Lancet, the world's oldest, most prestigious, and best known general medical journals, reaching millions of physicians worldwide.


The exhibit currently consists of 100 portraits representing children living with rare and undiagnosed diseases. With your patronage, Beyond the Diagnosis will continue to grow, increase rare disease education in medical schools, increase research at some of the world’s leading institutions, create new conversations about rare diseases and bring hope and joy to the rare disease community. There has never been an opportunity to give so little and change so much for the rare disease community!





Beyond the Diagnosis art exhibit has visited the following venues:

2015: Brown University Medical School, Harvard Medical School


2016: National Institutes of Health, Broad Institute, Zucker School of Medicine at Hofstra


2017:  National Institutes of Health, Broad Institute, Zucker School of Medicine at Hofstra, Food & Drug Administration, Children's of Alabama, Children's of Texas, Quinnipiac, Disorder: The Rare Disease Film Festival


2018: Mayo Clinic at Rochester Art Center, Broad Institute,  Food & Drug Administration, Children's of Alabama, Texas State University, World Symposium, MassBio Rare Disease Day, Alfred I. duPont Hospital for Children


Many of the above venues are already booked for 2019. Please help us meet the demand for this groundbreaking exhibit by supporting a portrait. Your donation will help cover costs like framing, catalogs, shipping, reproductions and storage. Thank you for your support!


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