Glucose Transporter Type 1 Deficiency Syndrome
is a rare genetic disorder that impairs brain metabolism.
Glucose isn’t transported properly into the brain,
leaving it starving for the energy it needs to grow and function.
Some of the most common signs and symptoms may include seizures,
movement disorders, speech and language disorders,
and developmental delays, all of which affect Will.
There is currently no cure for Glut1 Deficiency.
William Hagler, at 21 months of age, was diagnosed with Glut 1.
This came in November of 2018, after almost one year of questions,
seeing specialists, and waiting for test results.
Supporting us, you are:
· Raising awareness about the Glut 1 disease
· Supporting the Glut 1 Deficiency Foundation in their research
for treatments and a cure
· Loving our Will
Thank you for praying for Will,
we believe God has a special plan for his life.
The Love Some1 with Glut1 annual campaign is the primary awareness and fundraising event for the Glut1 Deficiency Foundation. It runs from February 14-28, Valentine's Day through Rare Disease Day, and it is an important opportunity to spread awareness and raise much-needed funds to help better serve the needs of the Glut1 community.
Please visit our website to learn more about Glut1 Deficiency and the work of the G1D Foundation.