Hi, my name is Gracie, or Amazing Grace as my mom calls me.
It's is time for my family's annual Glut1 Deficiency Foundation fundraiser. This fundraiser kicks off on Valentine's Day because we all <3 Some1 with Glut1 and ends on February 28th which is Rare Disease Day.
Everyone asks how they can help me fell and live better. Well, here's your chance!!
With this fundraiser we hope to achieve the following:
- Helping children and young adults like me who have glut1 to live better lives
- Help to diagnose new cases of glut1 from infancy into adulthood - early detection is critical
- Find better treatment options other than the Ketogenic Diet and anti convulsants (which are not effective enough)
- Give me hope for a future without the symptoms of Glut1 or better yet, a CURE for Glut1!
Here's a little bit about me! I am 12 years old and am in 6th grade. My favorite subject is math. We live on a farm and I love to hold the newborn chicks. I love to ride my horses and give them treats. I take therapeutic horseback riding lessons to help with my strength, focus and stability. I'm just a normal kid for the most part, but with a very rare disorder that makes daily activities challenging. I dream of a day when I don't have to weigh out my food, a day when I can eat candy with real sugar and be like everyone else.
Mom, Dad and my big sister love me so much and don't let my challenges limit me in what we do!
Thank you for taking the time to read about me. Please make a donation if you can and help me reach my goal to help the Glut1 Deficiency Foundation. Make a difference today!
(We accept donations throughout the entire year and your donations are tax deductible.)
The Love Some1 with Glut1 annual campaign is the primary awareness and fundraising event for the Glut1 Deficiency Foundation. It runs from February 14-28, Valentine's Day through Rare Disease Day, and it is an important opportunity to spread awareness and raise much-needed funds to help better serve the needs of the Glut1 community.
Please visit our website to learn more about Glut1 Deficiency and the work of the G1D Foundation.