Dear Family and Friends,
We are so happy to be participating in the Love Some1 with Glut1 annual campaign this year! After searching for 8 years for answers, Claire was diagnosed with Glut1 Deficiency in February 2009 at the age of 10. It is a very rare condition that can cause her to have absence seizures, difficulties with coordination and mild articulation issues. Currently there is no cure for Glut1 Deficiency, but Claire is on the Ketogenic Diet to control and manage her symptoms. She will be celebrating 10 years on the diet in a few months. The Ketogenic Diet is challenging and time consuming to maintain, but she has persevered and has remained seizure free for almost 10 years! Such an answer to prayer! She has persistently worked hard to overcome many challenges and graduated from high school last May. Claire LOVES competing in annual equestrian competitions, enjoys volunteering, and has found a true passion in learning American Sign Language and working with the Deaf. You can also find her painting whenever she isn't studying! She recently started her 2nd semester of college and she is loving it! These accomplishments wouldn't have been possible without her diagnosis and the tremendous effort of many people.
Your support for this campaign will help raise awareness and funds for research for Glut1 Deficiency, that will hopefully lead to a cure soon! All donations are fully tax deductible.
Thank you for loving Some1 with Glut1 and for helping to bring hope to Claire and all of the Glut1 community!
Love, Beverly and Claire
The Love Some1 with Glut1 annual campaign is the primary awareness and fundraising event for the Glut1 Deficiency Foundation. It runs from February 14-28, Valentine's Day through Rare Disease Day, and it is an important opportunity to spread awareness and raise much-needed funds to help better serve the needs of the Glut1 community.
Please visit our website to learn more about Glut1 Deficiency and the work of the G1D Foundation.