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Kentucky Loves Some1 with Glut1

by Cole Huff

Supporting: Love Some1 with Glut1 2019 for Glut1 Deficiency Foundation

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Macie and Glenna Steele have always been a part of my life. Their journey has taken them from receiving Macie's diagnosis to countless trips to specialists to now. Along the  way both Macie and her family have been an inspiration to myself and the community around them. Positivity and generosity seem to follow them everywhere they go. Glenna is now the director of the Glut1 Deficiency Foundation and operates this from Bath County, Kentucky. She has been working hard to secure research grants to find a cure for Glut1 . Supporting this fundraiser will go a long way into securing these grants.  I personally can not think of a group of more deserving people. Rare diseases are often underfunded because they are not highly publicized. I encourage everyone to give back to their community, to a great family, and a great foundation, to show that Kentucky loves some1 with Glut1.


The Love Some1 with Glut1 annual campaign is the primary awareness and fundraising event for the Glut1 Deficiency Foundation. It runs from February 14-28, Valentine's Day through Rare Disease Day, and it is an important opportunity to spread awareness and raise much-needed funds to help better serve the needs of the Glut1 community. 


All donations support our mission programs, and this year, all proceeds from the campaign will be put to use specifically to boost amounts for the current cycle of our research grant award program.  

Thank you for helping us reach our goal and continue to bring help and hope to the Glut1 community!








Please visit our website to learn more about Glut1 Deficiency and the work of the G1D Foundation.








How would you like to support?

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