Dear Friends and Family,
February 14th kicks off the Glut 1 Foundation annual fundraiser and February 28th celebrates Rare Disease Day!
We can hardly believe it has been 6 years since Dominic's diagnosis. Each year the Glut1 Deficiency Foundation works tirelessly to provide support to the Glut1 Deficiency community and raise money for research. Since our diagnosis we have seen so many more children and adults diagnosed thanks to advancements and availability to genetic testing and research. The president, executive director, and volunteer parents work everyday to educate the medical professional community, educate and advocate for diagnosed patients in need, and collaborate with networks to help better our education and advocacy efforts. The incredible progress of this organization would not be possible without donors. We thank you from the bottom of our heart for anyone who has helped support our cause over the years. It really has made a difference and is changing the lives of those affected by Glut1.
This journey, although unexpected, has been incredible and eye opening. We are grateful for the wonderful families we have met and the opportunity to help others diagnosed and yet to be diagnosed. I truly believe in making the best of what we have been given. Below are some pictures of some of our dear Glut1 friends and of the conference this past summer in Washington DC.
The Love Some1 with Glut1 annual campaign is the primary awareness and fundraising event for the Glut1 Deficiency Foundation. It runs from February 14-28, Valentine's Day through Rare Disease Day, and it is an important opportunity to spread awareness and raise much-needed funds to help better serve the needs of the Glut1 community.
Please visit our website to learn more about Glut1 Deficiency and the work of the G1D Foundation.