Please help us with our GLUT1 fundraiser. Dylan has a rare genetic disorder that affects his brain called Glucose Transmitter Type 1 Deficiency Syndrome. His brain is unable to break down carbs which turn into sugar and transport it to his brain. This leaves his brain starving for energy. He also has seizures, ataxia and a movement disorder. There is currently no cure for his condition. He is on the Ketogentic diet that has helped. Dylan is 14yrs old and is my big baby boy. He needs 24hr care which is hard because I am a single parent. We will make it with God's help and strength. Dylan loves to dance, sing, go to church. He also enjoys going to Knott's Berry Farm, Special Olympics Swim, Challenger Baseball and VIP Soccer. He loves to laugh and have a good time like everyone else. His smile is contagious!
Please help us raise funds for education, awareness, research and ultimately a CURE! Any amount helps out!
Thank you for your continued Love and Support!
Much Love to all,
Dylan and his Mama June
The Love Some1 with Glut1 annual campaign is the primary awareness and fundraising event for the Glut1 Deficiency Foundation. It runs from February 14-28, Valentine's Day through Rare Disease Day, and it is an important opportunity to spread awareness and raise much-needed funds to help better serve the needs of the Glut1 community.
Please visit our website to learn more about Glut1 Deficiency and the work of the G1D Foundation.