Savana’s Glut1 Deficiency story is a little different this year. She has helped raise money for quite a while for the foundation but this year we were blessed to benefit from the foundation’s support. Savana is currently on a C7 (triheptinoin) oil clinical trial which the foundation has helped support. With this medical grade food trial done by Dr. Juan Pascaul, we were able to see Savana blossom and grow with the help of C7. Without the support from fundraising of the Glut1 Deficiency Foundation, this clinical trial would never come to fruition. Any amount helps our kids. Thank you from the bottom of our hearts because of your donation, our daughter can live the life we thought she lost.
The Love Some1 with Glut1 annual campaign is the primary awareness and fundraising event for the Glut1 Deficiency Foundation. It runs from February 14-28, Valentine's Day through Rare Disease Day, and it is an important opportunity to spread awareness and raise much-needed funds to help better serve the needs of the Glut1 community.
Please visit our website to learn more about Glut1 Deficiency and the work of the G1D Foundation.