October is Prenatal-onset Group B Strep (GBS) Disease Recognition Month.
Our daughter, Nola, died of sepsis caused by GBS. She was born at 5:46 p.m. on May 6, 2008 and died 36 minutes later, at 6:22 p.m. Although she didn't live long, she continues to mean so much to us.
This is link to Nola's birth story https://www.groupbstrepinternational.org/nola-rani-paterson.html. Spoiler alert!!! You will need tissues.
If you are able to donate, please help with this campaign. The goal is to provide information to pregnant women on GBS.
Thank you for joining us for our Prenatal-onset GBS Disease Recognition Campaign! We need your help to promote awareness that group B strep (GBS) can infect babies not only once born, but also before birth. Currently, most medical literature only acknowledges two types of GBS disease: early-onset (birth through the first week of life) and late-onset (after the first week of life to several months of age). However, pregnancy is also a distinct time when babies are susceptible to group B strep.
Our goal is for prenatal-onset group B strep disease to be widely recognized in order to promote research for its prevention and to #starttheGBSconversation to inform pregnant women worldwide about knowledge-based strategies to help protect their unborn babies from being miscarried, stillborn, born too soon, or born already sick due to group B strep.
GBS causes an estimated 57,000 possibly even up to 314,600 unborn babies
to die in their mother's womb or be born already infected each year as well as
potentially causing 3,500,000 babies to be born too soon!
Here's what we're doing:
- Presenting a poster on Prenatal-onset Group B Strep (POGBS) at the International Stillbirth Association's conference in Madrid, Spain October 4-6, 2019.
- Collaborating at the Perinatal Death Classification workshop in Madrid, Spain on October 3rd. This is crucial as currently perinatal death certificates are not routinely updated once the cause of death has been determined. Currently, if a baby dies of a GBS infection which isn't usually visually apparent, the cause of death is initially marked as "Unknown" and usually remains as "Unknown" so the actual burden of GBS disease isn't recognized appropriately for research priorities and governmental awareness campaigns.
- Developing an information sheet for patients to share with their healthcare providers about much-needed knowledge to help recognize and possibly prevent GBS infections during pregnancy.
- Developing an informative guide to inform readers about the complex issues surrounding prenatal-onset GBS disease.
Here's how you can help:
- Share our brochure which includes what women can do to help protect their unborn babies from GBS (contact us at firstname.lastname@example.org)
- Start a fundraising team!
- Make a donation!
- Learn more about prenatal-onset GBS disease
We are grateful for your support!
#AsAGroupBTheChange #starttheGBSconversation #POGBSDrecognition