We are so excited to be a part of the LOVE SOME1 WITH GLUT1 campaign again this year! It is our 9th year.
The Glut 1 Deficiency Foundation is the single source of support provided to Glut 1 families. It is run mostly by volunteers who give countless hours of their time to make sure that kids (and adults) and their families like ours have a place to go. We share our stories, our successes, our failures. We give each other the social and emotional support that is needed to get through the bad days and the good days. We meet at conventions to hear the latest updates from the medical field and raise awareness with doctors on Glut 1. The Foundation's staff shares regular informational packets to newly diagnosed families and provide online support along with paper brochures to anyone that wants or needs them. Most of all, they provide financial support to Dr's who are willing to research for a Glut 1 cure, which is what every Glut 1 person wants.
We are a rare group, living with a rare disease with only approximately 1000 people being diagnosed in the world! The support me and my family receives from the Glut 1 Deficiency Foundation is priceless.
Please help Ethan reach his goal of raising $10,000 for the G1D foundation. You support is very much appreciated. Love Ethan and family.
The Love Some1 with Glut1 annual campaign is the signature awareness and fundraising event for the Glut1 Deficiency Foundation, running from February 14-29, Valentine's Day through Rare Disease Day. It is an important opportunity to educate others and raise much-needed funds to help better serve the needs of our patient community through our mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.
learn more about love
messages from the heart of our community
learn more about Glut1 Deficiency
our new video to help raise awareness and improve education
please visit our website for more information