Donate to Glut1 research for Emilee's birthday?

by Victoria Fitzgerald

Supporting: Love Some1 with Glut1 2020 for Glut1 Deficiency Foundation


Campaign has ended.


Glut 1 is a disorder that not many people are aware of. When emilee was diagnosed in 2014 there was only 500 cases recorded worldwide. That number is double by now but only because the medical field is learning about it and how to recognize it and test for it. Emilee was being tested for several disorders for 18 months before they figured out what she had including genetics testing with no results. Money for research and increasing awareness is key for Glut1 patients and the quality of life they are able to lead.  Emilee went from 15 to 25 seizures a day to zero seizures in 2 days on nothing more than a diet change! Awareness is key! If you can change your child's diet and them be able to function on normal levels with other children is truly is amazing.  If health professionals are able to continue researching maybe they can find a way to prevent Glut 1 or diagnose it in early infancy before symptoms start.  LOVE SOMEONE WITH GLUT1!! LETS RAISE SOME MONEY!

The Love Some1 with Glut1 annual campaign is the signature awareness and fundraising event for the Glut1 Deficiency Foundation, running from February 14-29, Valentine's Day through Rare Disease Day. It is an important opportunity to educate others and raise much-needed funds to help better serve the needs of our patient community through our mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.

Thank you for helping us reach our goal and supporting us as we continue our work to bring help and hope to everyone, everywhere, who is affected by Glut1.  You make our mission possible.

learn more about love

messages from the heart of our community

learn more about Glut1 Deficiency

our new video to help raise awareness and improve education

please visit our website for more information

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