Glut 1 is a disorder that not many people are aware of. When emilee was diagnosed in 2014 there was only 500 cases recorded worldwide. That number is double by now but only because the medical field is learning about it and how to recognize it and test for it. Emilee was being tested for several disorders for 18 months before they figured out what she had including genetics testing with no results. Money for research and increasing awareness is key for Glut1 patients and the quality of life they are able to lead.  Emilee went from 15 to 25 seizures a day to zero seizures in 2 days on nothing more than a diet change! Awareness is key! If you can change your child's diet and them be able to function on normal levels with other children is truly is amazing.  If health professionals are able to continue researching maybe they can find a way to prevent Glut 1 or diagnose it in early infancy before symptoms start.  LOVE SOMEONE WITH GLUT1!! LETS RAISE SOME MONEY!