Macie and Glenna Steele have always been a part of my life. Their journey has taken them from receiving Macie's diagnosis to countless trips to specialists to now. Along the way both Macie and her family have been an inspiration to myself and the community around them. Positivity and generosity seem to follow them everywhere they go. Glenna is now the director of the Glut1 Deficiency Foundation and operates this from Bath County, Kentucky. She has been working hard to secure research grants to find a cure for Glut1 . Supporting this fundraiser will go a long way into securing these grants. I personally can not think of a group of more deserving people. Rare diseases are often underfunded because they are not highly publicized. I encourage everyone to give back to their community, to a great family, and a great foundation, to show that Kentucky loves some1 with Glut1.
The Love Some1 with Glut1 annual campaign is the signature awareness and fundraising event for the Glut1 Deficiency Foundation, running from February 14-29, Valentine's Day through Rare Disease Day. It is an important opportunity to educate others and raise much-needed funds to help better serve the needs of our patient community through our mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.
learn more about love
messages from the heart of our community
learn more about Glut1 Deficiency
our new video to help raise awareness and improve education
please visit our website for more information