Thank you so much for checking out my Love Some1 with Glut1 fundraising page! I was diagnosed with Glut1 Deficiency at the age of 10. I am currently on a medical Ketogenic Diet that thankfully controls my absence seizures. It is time consuming and has some challenges, but it helps me to thrive. There is currently no cure for Glut1. It is a rare disorder that affects glucose transport to the brain. It is very important for us to raise awareness, be an advocate for patients like me and our families and raise funds for research to find a cure!
I have been busy this year traveling, painting, learning photography, horseback riding, learning karate and of course going to school. My sophomore year is going well and I was very excited when I recently found out that I made the Dean's List! I am determined to accomplish my goals and help others accomplish theirs too.
Thank you so much for your support! I am so blessed and grateful to have such an amazing support system that works so tirelessly to help all of us with Glut1 and those who love us!!
The Love Some1 with Glut1 annual campaign is the signature awareness and fundraising event for the Glut1 Deficiency Foundation, running from February 14-29, Valentine's Day through Rare Disease Day. It is an important opportunity to educate others and raise much-needed funds to help better serve the needs of our patient community through our mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.
learn more about love
messages from the heart of our community
learn more about Glut1 Deficiency
our new video to help raise awareness and improve education
please visit our website for more information