Por Eder

by Elida Ramos

Supporting: Love Some1 with Glut1 2020 for Glut1 Deficiency Foundation



Mi hijo Eder fué recién diagnósticado,ya es un adulto,quizás si hubiera tenido un diagnóstico precóz hubiera tenido más oportunidad.Mi intención apoyando esta causa es para generar recursos para las investigaciones de esta condición.

Quiero ser la voz para que se conozca  Glut1 y mi deseo es que  más niños tengan la oportunidad de ser diagnósticados a temprana edad .

Tu apoyo y ayuda puede hacer la diferencia.

Agradezco de antemano lo que puedan aportar de ❤️

The Love Some1 with Glut1 annual campaign is the signature awareness and fundraising event for the Glut1 Deficiency Foundation, running from February 14-29, Valentine's Day through Rare Disease Day. It is an important opportunity to educate others and raise much-needed funds to help better serve the needs of our patient community through our mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.

Thank you for helping us reach our goal and supporting us as we continue our work to bring help and hope to everyone, everywhere, who is affected by Glut1.  You make our mission possible.

learn more about love

messages from the heart of our community

learn more about Glut1 Deficiency

our new video to help raise awareness and improve education

please visit our website for more information

How would you like to support?