Dominic Rebbecchi

by Dominic Rebbecchi

Supporting: Love Some1 with Glut1 2020 for Glut1 Deficiency Foundation



Dear Friends and Family, 

February 14th kicks off the Glut 1 Foundation annual fundraiser and February 28th celebrates Rare Disease Day!

We can hardly believe it has been 6 years since Dominic's diagnosis. Each year the Glut1 Deficiency Foundation works tirelessly to provide support to the Glut1 Deficiency community and raise money for research.  Since our diagnosis we have seen so many more children and adults diagnosed thanks to advancements and availability to genetic testing and research. The president,  executive director, and volunteer parents work everyday to educate the medical professional community, educate and advocate for diagnosed patients in need, and collaborate with networks to help better our education and advocacy efforts. The incredible progress of this organization would not be possible without donors.  We thank you from the bottom of our heart for anyone who has helped support our cause over the years. It really has made a difference and is changing the lives of those affected by Glut1. If you have a few moments  could you please watch the 2 videos below. The first is a collection of videos and pictures of our Glut1 Families. The 2nd is a new educational video released by the Glut1 Foundation to help educate the community. 

This journey, although unexpected, has been incredible and eye opening. We are grateful for the wonderful families we have met and the opportunity to help others diagnosed and yet to be diagnosed. I truly believe in making the best of what we have been given. Below are some pictures of some of our dear Glut1 friends and of the conference this past summer in Washington DC.

The Love Some1 with Glut1 annual campaign is the signature awareness and fundraising event for the Glut1 Deficiency Foundation, running from February 14-29, Valentine's Day through Rare Disease Day. It is an important opportunity to educate others and raise much-needed funds to help better serve the needs of our patient community through our mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.

Thank you for helping us reach our goal and supporting us as we continue our work to bring help and hope to everyone, everywhere, who is affected by Glut1.  You make our mission possible.

learn more about love

messages from the heart of our community

learn more about Glut1 Deficiency

our new video to help raise awareness and improve education

please visit our website for more information

How would you like to support?