Auri is four years old and was diagnosed with Glut1 at 18 months old. She has had many ups and downs and quite a lot of struggles, but she amazes us with her endless smile and outpouring of love to everyone around her. She has tenacity like nobody I’ve ever known. She is our hero and truly a blessing in our lives. We love someone with Glut1 ❤️
The Love Some1 with Glut1 annual campaign is the signature awareness and fundraising event for the Glut1 Deficiency Foundation, running from February 14-29, Valentine's Day through Rare Disease Day. It is an important opportunity to educate others and raise much-needed funds to help better serve the needs of our patient community through our mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.
learn more about love
messages from the heart of our community
learn more about Glut1 Deficiency
our new video to help raise awareness and improve education
please visit our website for more information