William was diagnosed with Glut1 Deficiency in December, after 2 years of poorly controlled seizures. There is no cure for Glut1. He is currently enrolled in a clinical trial, with the hope that his seizures and developmental delays improve. Please help me and the Glut1 Deficiency Foundation raise money for awareness and research ❤
The Love Some1 with Glut1 annual campaign is the signature awareness and fundraising event for the Glut1 Deficiency Foundation, running from February 14-29, Valentine's Day through Rare Disease Day. It is an important opportunity to educate others and raise much-needed funds to help better serve the needs of our patient community through our mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.
learn more about love
messages from the heart of our community
learn more about Glut1 Deficiency
our new video to help raise awareness and improve education
please visit our website for more information