My name is Aumi and I have Glut1 Def type 1. Every day I smile. You would never know the struggles over the years just to even get my diagnosis. I went through so much pain and so many tests before this was even thought of. Mommy researched every day until she came across some information about Glut1 and we took a chance and had a spinal tap done to confirm. My journey is far from over, and now we have an answer, but we need to know more! Please help me fight to bring more awareness about my rare genetic defect so that no family has to go through what we have! You are also helping us get closer to understanding more about Glut1♡ Every little bit helps families like mine!
The Love Some1 with Glut1 annual campaign is the signature awareness and fundraising event for the Glut1 Deficiency Foundation, running from February 14-29, Valentine's Day through Rare Disease Day. It is an important opportunity to educate others and raise much-needed funds to help better serve the needs of our patient community through our mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.
learn more about love
messages from the heart of our community
learn more about Glut1 Deficiency
our new video to help raise awareness and improve education
please visit our website for more information