After four years of searching for answers, Claire was diagnosed with Glut1 Deficiency Syndrome. Her brain doesn't receive the proper amount of glucose to function and so we give it alternative fuel through the ketogenic diet. Her brain now runs off fat. Because Glut1 is rare, it doesn't get a lot of funding. Every year at this time, we ask for your help through donations. We hope for a cure.
The Love Some1 with Glut1 annual campaign is the signature awareness and fundraising event for the Glut1 Deficiency Foundation, running from February 14-29, Valentine's Day through Rare Disease Day. It is an important opportunity to educate others and raise much-needed funds to help better serve the needs of our patient community through our mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.
learn more about love
messages from the heart of our community
learn more about Glut1 Deficiency
our new video to help raise awareness and improve education
please visit our website for more information